Young People Creating Change

“It’s not just about teaching those who don’t have HIV not to be afraid of us. It’s about teaching those with HIV that we are worthy. I don’t want anyone else to cry themselves to sleep at night because they feel dirty, diseased, unimportant, dangerous or unlovable. Because that is not true.”

– Ava (Name changed for anonymity)

Our Children and Families Project has been working with children and young people living with HIV since 1992. We’ve learned a lot over the years, most importantly that young people need to be listened to, in order to help create the change they need to live well with HIV.

In 2018, we were lucky enough to be funded by the Health and Social Care Alliance Scotland (The Alliance) to develop, deliver and evaluate a National Self Management Programme by and for 19 – 30 year olds living with HIV. The programme was the idea of a group of young adults who we previously supported through our Poz Youth service (for 12- 18 year olds living with HIV). These young adults felt that existing adult support services did not meet their needs, so they wanted to create a change and make life better for young people living with HIV across Scotland. The young adults have been involved in every stage of developing the Self Management Programme and are looking forward to helping facilitate the workshops.

When and Where:

The first workshop takes place on Saturday 27th April, 11am4pm, at our Edinburgh office, Waverley Care, 3 Mansfield Place, Edinburgh, EH3 6NB. 

What’s the Programme all About:

What You Can Expect to Learn:

The programme will cover lots of topics identified by the young adults as important in helping young people living with HIV navigate and manage life. Each workshop will be followed by a social activity paid for by us, from a meal out to a trip to an escape room! Workshop topics will include:

The programme will also be a fantastic opportunity to meet other young adults, giving you the chance to benefit from peer support in a safe environment.

Got Questions?

If you would like more information about the Self Management Programme, please get in touch with Lynne,, 0131 5581425 or Nichola,, 0131 5581425.

Find out more about what we do:

If you would like to find out more about what we do at Waverley Care, our latest edition of Positive Interest is available online to read now.