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Young People Creating Change

Our Children and Families Project has been working with children and young people living with HIV since 1992. We’ve learned a lot over the years, most importantly that young people need to be listened to, in order to help create the change they need to live well with HIV.


“It’s not just about teaching those who don’t have HIV not to be afraid of us. It’s about teaching those with HIV that we are worthy. I don’t want anyone else to cry themselves to sleep at night because they feel dirty, diseased, unimportant, dangerous or unlovable. Because that is not true.” – Ava (Name changed for anonymity)

In 2018, we were lucky enough to be funded by the Health and Social Care Alliance Scotland (The Alliance) to develop, deliver and evaluate a National Self Management Programme by and for 19 – 30 year olds living with HIV. The programme was the idea of a group of young adults who we previously supported through our Poz Youth service (for 12- 18 year olds living with HIV). These young adults felt that existing adult support services did not meet their needs, so they wanted to create a change and make life better for young people living with HIV across Scotland. The young adults have been involved in every stage of developing the Self Management Programme and are looking forward to helping facilitate the workshops.

When and Where:

The first workshop takes place on Saturday 27th April, 11am – 4pm, at our Edinburgh office, Waverley Care, 3 Mansfield Place, Edinburgh, EH3 6NB. 

What’s the Programme all About:

  • The Self Management Programme will provide an opportunity to learn about and discuss issues that young adults identified as being important to them.
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  • The programme will give young adults the chance to build peer relationships with other 19 – 30 year olds living with HIV and develop strategies for managing life on a day-to-day basis.
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  • The programme is facilitated by Lynne and Nichola from our Children and Families team and, the workshops will also involve professionals with specialist knowledge in their field.
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  • The programme covers the whole of Scotland and we can support young adults from anywhere in Scotland to attend.
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  • If you need one to one support to get involved, we can give you this support before, during and after programme.
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  • If you’re interested in some of the workshops but not all, you can join us for the ones you prefer – although you will need to participate in at least two workshops to attend a residential trip planned for February 2020.
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  • Spaces are limited! We want to make sure the workshops are a great environment for learning and, that we can support everyone whos participating. So get in contact soon if you would like to book your space.
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  • The Self Management Programme will take place at Waverley Care, 3 Mansfield Place, Edinburgh, EH6 3NB.  We will reimburse travel costs on the day of the workshop.

What You Can Expect to Learn:

The programme will cover lots of topics identified by the young adults as important in helping young people living with HIV navigate and manage life. Each workshop will be followed by a social activity paid for by us, from a meal out to a trip to an escape room! Workshop topics will include:

  • Exploring what HIV means to you and how to talk about the condition in a safe and supportive environment
  • Learn about life skills like managing relationships, money, how to apply for a job or uni, and more!
  • Ask questions and learn about PrEP, Pep and U=U

The programme will also be a fantastic opportunity to meet other young adults, giving you the chance to benefit from peer support in a safe environment.

Got Questions?

If you would like more information about the Self Management Programme, please get in touch with Lynne, Lynne.Williamson@waverleycare.org, 0131 5581425 or Nichola, Nichola.Frith@waverleycare.org, 0131 5581425.

Find out more about what we do:

If you would like to find out more about what we do at Waverley Care, our latest edition of Positive Interest is available online to read now.


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